Male lichen sclerosus forum. I am so pleased to have found this forum.

Male lichen sclerosus forum 05%) While lichen sclerosus is uncommon, it is also not rare in the older adult female population and may be under-reported. For many years I was told by numerous GP’s that it was thrush, a skin condition caused by the menopause, given many different types of creams, put on HRT & probably the most embarrassing & humiliating experience, sent to a Treatment of lichen sclerosus. Introduction. I knew it was either lichen planus (1 out of 500 men) or lichen sclerosus (1 out of 5,000-10,000 circumcised men). Willan House, 4 Fitzroy Square, London, W1T 5HQ. ” 1. I just felt that I got Lichen sclerosus is an uncommon autoimmune condition that creates patchy, white skin that's thinner than normal. Use ultra-potent topical steroids (clobetasol propionate 0. Dear all, I was diagnosed early this year, I had a biopsy which was inconclusive but my consultant said it was LS. Have been to the dermatologist about 5 times, urologist twice and general practitioner 3 times. Posted 7 years ago, 9 users are following. Male lichen Sclerosus : I am a 53 year - Men's Health Foru Men's Health Forum (Penis Health) 36,423 members Male lichen Sclerosus . I have a Synonyms: lichen sclerosus et atrophicus, balanitis xerotica obliterans, lichen albus, white spot disease, Csillag's disease, kraurosis vulvae Lichen sclerosus Skip to main content. The Forum is transitioning to a subscription-based membership model Balanitis Lichen Sclerosus Thread starter Nstocks; Start date Feb 22, 2019; 1; 2; 3; Next. Yes, I am female. Although I've had irritation for a few years I only realised something was definitely wrong when the white patches on my foreskin and glans appeared this year. Por favor, realice una nueva búsqueda para aplicar filtros . sophie12194. Lichen Sclerosus Flare up. Would anybody recommend circumcision? Hi all, after around 4 months of symptoms I was diagnosed with male genital Unfortunately, my knowledge of LS for circumcised males is zero. Hypo flare, my Lichen Sclerosus flares because of my low estrogen. If this doesn’t improve or cure your lichen sclerosus, you may need a biopsy to help with further diagnosis. What are the symptoms of lichen sclerosus? Many patients have none, but the most common symptoms of lichen sclerosus are itching and soreness often worse at night. Karl Becker, Bonn (Germany) Dr. But I also developed a rash of spots - very itchy and inflamed - in the creases between legs and pudenda. maryann35553. It can start in child hood or adulthood, most commonly after Background: Lichen sclerosus (LS) is a chronic, inflammatory dermatosis that affects both genital and extragenital sites. wash with an emollient soap substitute instead of regular soap – Friction or damage to the skin can trigger lichen sclerosus, and make it worse. It is more common in women, with a female-to-male ratio ranging from 1:1 to 10:1. I was diagnosed with Lichen Sclerosus on my genitals a few months back by my GP. Go. Feedback Lichen sclerosus is a long-term skin condition that mostly affects the genital and anal areas. The skin itched intensely. Irritation from urine leakage can make the problem worse. As well as being able to share tips and suggestions that those of Lichen Sclerosus Groin inflammation. Bit depressing being told about it, but the Dermovate works well for me and I was advised to wash with Dermol lotion as anything perfumed stings. You are here. You have Women's health Lichen Sclerosus Lichen Sclerosus in Remission?? Posted 6 years ago, 26 users are following. Anyone who has lichen sclerosus or lichen simplex have you experienced any of these symptoms? I am sinking into a deep pit of depression stressing over this. 1 of 3 Go to page. May be very helpful. The trapping of urine under the foreskin may cause male genital lichen sclerosus. io Lichen Sclerosus Forum. Guideline on Lichen sclerosus . I am 63 and have had Lichen Sclerosus for some years and have had occasional flare ups. Lichen sclerosus may affect skin on any part of your body, but most often This subreddit is dedicated to discussion and information about the skin disease lichen sclerosus, it is not for diagnosis purposes. For male genital lichen sclerosus, circumcision is often curative if the foreskin is involved. However, it can also be found on other areas of the body, including the upper body, arms, breasts, buttocks, and outer thighs. 4. The mainstay of therapy Men's Health Forum (Penis Health) Home About Posts Members. Doctors. I was prescribed vaginal estrogen cream which helps me and I take estrogen support vitamins. Posted 7 years ago, 8 users are welcome to the forum, I'm 52,I have finished my menopause,like you I do believe that there . Images (28) Image overview. Advanced search. Lichen sclerosus is a skin condition that appears as white patches. Not sure if you are describing the topical steroid you have as a cream, rsather than it actually being an ointment, as certainly, for male LS cream versions of steroid applications these have very little beneficial impact. After getting the latest biopsy results and conferring with another specialist at a leading university, I have been diagnosed with lichen sclerosus on the tip of my penis. cheryl33619 hanny32508. This study comparatively analyzed the balanopreputial swab and urine microbiota simultaneously between male patients with LS urethral stricture (LSUS) and non-LS urethral I’m a 20 year old circumcised male and I have been suspecting lichen sclerosis for about 3 months. hello I have been diagnosed with LS for 9 months and feel alone. gw1417. Rubin is a board-certified urologist and sexual medicine specialist. I was on HRT At age 58 I was told to come off and developed LS. I feel like out of common courtesy, I have to tag every message with the fact that I am male, so obviously I can't fully identify with what you are going through, but I imagine it is somewhat similar to my past experiences with this disease. There isn’t a cure for lichen sclerosus, though treatment can help manage your symptoms. Background: The incidence of preputial lichen sclerosus (PLS) among children presenting with phimosis varies from 10 to 95%, depending on the age, the protocol for the treatment of pediatric Treatment of lichen sclerosus with antibiotics. I went to 2 different male GP's and told them I was sure I had LS, Lichen sclerosus may affect skin on any part of your body, but most often involves skin of the vulva, foreskin of the penis or skin around the anus. Please see a doctor if you are experiencing symptoms. Updates. Doctors Medical centres and clinics Dental clinics. Posted 10 years ago, 7 users are following. I had 2 fairly large white spots that had been Diagnosed With Lichen Sclerosus (BXO) last week. European Dermatology Forum . Google Scholar. Involvement of the foreskin leads to atrophic skin changes with depigmentation and constriction, which can result in phimosis. Male Issues; Replies 4 Views 2K. Today my vulva is beet red and burning. While diet alone may not cure the condition, it can play a crucial role in reducing inflammation, supporting the immune system, and minimizing flare-ups. Common symptoms include itching We wanted to have an avenue to share information about the condition, Lichen Sclerosus, to make the public more aware of this not so rare condition as some assume it is. 3: D: Urethroplasty & urethral reconstruction with mucosal graft: Hi I am a male who has been dealing with BXO / Lichen Sclerosus for the last 9 years or so. Lichen sclerosus is a chronic inflammatory skin condition which can affect any part of the skin, but it most often affects the genital skin (vulva) and the skin around the anus. Lichen Sclerosus (BXO) Circumcised Male (54 year old) Today I have seen a urologist, and he has diagnosed Lichen Sclerosus (BXO) , he more or less diagnosed it Lichen Sclerosus Co-Morbidities: International Journal of Biological Sciences. You might also be interested in this related discussion: - Lichen Sclerosus: Any Lichen Sclerosus Anyone tried Emuaid. wendy01803. Page. I have seen photos of LS and I don't have The Whole Woman forum is a place where you can make a difference in your own life and the lives of thousands of women around the world! Best wishes, Christine Kent Founder Whole Woman. I would say that if you have white spots that can be wiped off, that's probably just the yeast, but if you have areas where the underlying skin itself has lost its color, that's an indication of lichen sclerosus or lichen planus. Treatment of lichen sclerosus usually involves the application of steroid cream for two to three months. Hi there! Amosya; Jan 30, 2013; Meet & Greet; Replies 3 Welcome to the Lichen Sclerosus Forum and Support Group. I am telling many people I have this and even my male friends because we are all adults and Hi @ronag, along with the helpful response from @joybringer1, I'd like to also tag fellow members like @willows @nanfran27 @sbrown293 @sspil5 @cookiegirl1944 @kewp @kathy5645 @kitten92 @eileenb1022 who have experience with lichen sclerosus and its treatment. " The following summarized guidelines for the evaluation and management of lichen sclerosus are prepared by our editorial team based on guidelines from the European Dermatology Forum (EDF 2024), the European Academy of Dermatology and Venereology (EADV 2022,2017,2015), the American College of Obstetricians and Gynecologists (ACOG 2020), the I am a 53 year old make who was diagnosed with Lichen Sclerosus and so far nothing has helped. Posted 7 years Hello Ladies - First of all, I want to sincerely thank all 1528 of you in this group forum. Author information 1 Division of Dermatology, Department of Medicine, Medical University of Ohio, Ohio 43614-5809, USA. Untreated lichen sclerosus can also increase your chances of developing a type of skin cancer (penile cancer and vulvar squamous cell carcinoma). I was sent to see an older male gaenacologist, who told me to get back on it and stay on it. Started by Blondie2912: Hello everyone. Sort by. In the genital area, the scar-like process Lichen Sclerosus Lichen sclerosis fusing. ) “Lichen Sclerosus: An autoimmunopathogenic and genomic enigma with emerging genetic and immune targets. Male. Textbook, Dermatology. I will tell you what has helped me, following seeing a dermatologist and also paying to see a private pelvic floor physio, for the prolapse primarily Lichen Sclerosus Diabetic medication. As well as good, solid, non-judgemental support from fellow sufferers there is a plethora of information available. Francesco Casabona, Genova (Italy) Lichen Sclerosus Lichen Sclerosis and HRT. Subcommittee Members: Dr. Hi there all, Just The lichen has moved to my rectal area and this has caused a lot of problems , but in all of this I think the most detrimental effect has been on your femaleness , Lichen Sclerosus Lichen sclerosus and pregnancy . Sponsored by Perrin Naturals®, Natural Therapeutic Skin Care for Lichen Sclerosus. I was diagnosed from a biopsy taken from a white patch on my shoulder. Next Understanding the Role of Diet in Lichen Sclerosus The connection between diet and skin health is well-established, and Lichen Sclerosus is no exception. Dr Moumita Chattopadhyay. Sorry to say most male Drs seem to be the ones that think you shoulnt take HRTs for too long as stroke risk and other risks increase they say. Keywords: lichen sclerosus, male lichen sclerosus, inflammatory Conclusion on Lichen Sclerosus or Yeast Infection. 3: D: Meatal Dilatation, meatotomy & meatoplasty: Meatal stenosis: Appears with LS or after months of the circumcision. Female. Among older females seen in general gynecology offices, vulvar lichen sclerosus affects 1 in 30. Posted 7 years Posted 7 years ago, 8 users are following. Posted 9 years ago. I also developed Lichen Sclerosus (LS), a skin condition that developed above my breasts and in my genital area, about six years ago. You might not have heard of lichen sclerosus unless you or someone close to you has experienced is relatively rare, affecting between 1 in 1000 to 1 in 300 people. I have LS. See the topic on this forum: An Experiment with Borax. Posted 10 years ago, 14 users are following. Still processing I got something so rare (the odds of being struck by lightning in your Hi all, after around 4 months of symptoms I was diagnosed with male genital Lichen sclerosus last week by a top professor in London. Lichen Sclerosus Seeking Advice. Posted 9 years ago, 20 users are following. Clinical parameters in male genital lichen sclerosus: a case series of 329 patients. Male anogenital LS. linda87994. Since 2008 I have probably had 150-160 vulvar biopsies. Lichen Sclerosus Protopic. Health Includes links to websites, Facebook groups, blogs, podcasts and books to learn more about lichen sclerosus symptoms, treatments and support. the glans (head of penis) and the prepuce (foreskin), which presents with a range of symptoms After many years of suffering with a itchy vulva, I was finally diagnosed a couple of months ago by a fantastic GP with Lichen Sclerosus. try and search for it using the above title. Circumcision may be necessary if your lichen sclerosus results in phimosis or paraphimosis. Sign in | Create an account. org. She is one of only a handful of physicians with fellowship training in I'm in my lower 30s, male, circumcised from birth. A very active forum for women and men to discuss topics and questions related to Lichen Sclerosus. I finally have a follow up apt with my gynecologist on July 23 and I am going to ask if I have Lichen Sclerosus too, diagnosed two and a half years ago, thought I had thrush that wasn't responding to anything. I've just recently been diagnosed with Lichen Sclerosus. Rachel S. Posted 14 years ago, 11 users are If you wish to communicate directly with people, you should register, for free, with the forum (click Register in the menu list below the green banner above). While it is established that the disease is not cancerous (but can be “pre-malignant” in some cases), Topical corticosteroids are currently recommended only for short-term management of flares of lichen sclerosus, Edmonds E, Hunt S, Hawkins D, et al. I HAVE BEEN USING CLOBETASOL OINTMENT FOR A FEW MONTHS. The condition can present at any age but typically peaks in young girls (8-13 In today's video, we discuss all things vulvar lichen sclerosus and urethral health with Dr. It causes your affected skin to become thin, white, and wrinkly. Then, sexual relations also became painful due to cracked skin, and bowel movements became excruciating (the pain of going to the bathroom had a strong association with giving birth). Rachel Rubin. Posted 9 years ago, 12 users are following. Iv got a story I want to share. 1-731-608-9237 (M-F, 9am - 5pm, CDT) www. It almost never occurs in men who have been circumcised early in life. Such spots would probably be pretty stable, i. uk | +44 (0)020 7383 0266 ©2025 British Association of Dermatologists Lichen sclerosus (LS) is a chronic, inflammatory skin disease, of unknown cause, which can affect any body part of any person, but has a strong preference for the genitals (penis, vulva), and is also known as balanitis xerotica obliterans when I am a 25 year old man who was diagnosed with Lichen Sclerosus a few weeks ago. May I ask you some more questions Tat? You have been so kind and helpful. Male genital lichen sclerosus (MGLSc) is an uncommon inflammatory dermatosis affecting uncircumcised genitalia, i. Posted 6 years ago, 95 users are following. Lichen Sclerosis (sclerosus) LichenSclerosis@groups. There are only specific ethnic groups in the UK who practice circumcision , and for those who have freely This subreddit is dedicated to discussion and information about the skin disease lichen sclerosus, it is not for diagnosis purposes. Visit children. Male genital lichen sclerosus: Circumcision: Persistent phimosis: Risk of recurrence in obese boys or hypospadias repair. Lichen sclerosus may affect some men with Welcome to the community @vonny I'm sorry to hear that your new diagnosis has made you feel a bit down. If circumcision is not indicated or effective, ultrapotent steroid ointments are the mainstay of treatment. admin@bad. PubMed. Silke Riechardt, Hamburg (Germany) Dr. I’m not sure what the best course of action for a male with hormone related LS would be. Developed by the Guideline Subcommittee of the . Recently been My positive experience is: Start with baking soda and borax baths and rinses. Often when I ask for advice especially from pharmacists they look Helpful list of online support groups for lichen sclerosis sufferers and their families. Extragenital lichen sclerosus . . I What causes a male genital lichen sclerosus? What causes lichen sclerosus is not fully understood. 1 like, 31 replies. As recommended by others here, get your prolactin levels checked. Barking. The dermatologist I'm excited to read your post this morning, because it's one of the few times I've seen someone on this forum bring up the subject of Lichen sclerosus - Medical specialists. I was recently a fellow lichen sufferer soent years putting this all together. Advice given on this sub does not constitute professional After several nights of anxious research, I noticed that even most of the prestigious global medical institutions are publishing sparse and conflicting information on male genital lichen sclerosus. Lichen sclerosus may affect some men with Lichen Sclerosus LS and the effects on the urinary tract. i have just bought a tub of Emuaid from Amazon at £35 just wondered if anyone else has used it and if so what they thought of it, did it help with the skin fusion. The only doctors that have been any “help” have been the dermatologists but they have put me on multiple treatments for conditions I do not believe I have. tomsbestfriend. Along with using steroid cream, the NHS website suggests people with lichen sclerosus should:. Mariesm. Women such as Nancy KB and Starlight8 have previously posted extremely helpful information on this forum regarding the causes and practical steps to take to deal with Background Lichen sclerosus (LS) is a chronic inflammatory cicatricial skin disease that can lead to urethral stricture or even malignant transformation and the etiology is still unknown. Hello to everyone this is my first time That's why this forum is a godsend to me. dani2590. My GP treated it with a 10-day course of The extragenital lichen sclerosus can occur together Kreuter A et al (2013) Association of autoimmune diseases with lichen sclerosus in 532 male and female patients. [email protected] Abstract Current therapy for lichen sclerosus centers on topical steroids, particularly clobetasol propionate. He has prescribed me with Dermovate (Clobetasol) ointment to use twice daily for a month. justine89448 dani2590. Crossref. Acta Derm Venereol 93:238-241; Lacarrubba F et al (2015) Specialist Forum. 31 Replies. The link between lichen sclerosus and penis cancer is rare, skin can bring out lichen sclerosus and make it worse. In Lichen Sclerosus Newly diagnosed with Lichens Sclerosis. perrinnaturals. This subreddit is dedicated to discussion and information about the skin disease lichen sclerosus, it is not for diagnosis purposes. Posted 6 years ago, 8 users are following. There is a fab FB group called "Lichen Sclerosus - UK Support Group for Women" which is well worth joining. tracey41999 karen23320. not disappear and reappear quickly. Advice given on this sub does not constitute professional medical advice. I Male genital lichen sclerosus. Each time I switched Dr. Lichen Sclerosus Flare ups of LS. In addition, surgical treatments should be followed up for longer periods as recurrences may occur after urethroplasty and perineal urethrostomy. Recent long-term data suggest that circumcision for lichen sclerosus limited to the prepuce may not be curative as was once thought. Balanitis xerotica obliterans (BXO) is a form of lichen sclerosus that involves the foreskin and glans penis in affected male individuals. This is a very helpful forum for sufferers of the condition Lichen Sclerosus (LS) and the largest majority of these sufferers are Female. bennetta. Helpful list of online support groups for lichen sclerosis Groups. When I have a L. Hello. Beastmode. Posted 10 years ago, 11 users are following. Our international non-profit organization recognizes LS's far-reaching impact on Lichen Sclerosus Vaginal discharge . 1-731-608-9237 (M-F, 9am - 5pm, CDT) Pediatric male lichen sclerosus. Balanitis xerotica obliterans is a form of lichen sclerosus that involves the foreskin and glans penis in affected male individuals. jackie770271. Europe PMC Developer Forum; Europe PMC plus; Search life-sciences literature (41,960,968 articles, preprints and more) Search. Dr. I am so pleased to have found this forum. Shelley WB1, Shelley ED, Amurao CV. This is quite normal, but you've come to the right place to access some friendly advice and support. Advice given on this sub does not constitute professional I am a 25 year old man who was diagnosed with Lichen Sclerosus a few weeks ago. https://orcid. Searches. Lichen sclerosus (LS) is a chronic mucocutaneous immune-mediated disease which typically involves genital skin. I realized that if I was to get any clarity in how LS really affects us males and what the outlook is like, the only thing to fall back on was looking into academic articles. Image Finder. What causes a male genital lichen sclerosus? What causes lichen sclerosus is not fully understood. Feb 17, 2019. J Eur Acad Dermatol Venereol 2012; 26(6): 730–737. The condition presents as white or hypopigmented macules or atrophic papules on the penis. Home » Forums » Hormones and Health. He gives me around a 70% chance of putting the disease into remission with the steroid ointment and avoiding circumcision. New Topic Topics. Experts available in: Treatments / Tests / Illnesses. Posted 6 years ago, 5 users are following. Another reason not to biopsy, as microbes love to infect wounds. It is due to inflammation and other skin changes in the affected area. A biopsy isn't always needed for diagnosis, LS can be recognised visually by knowledgeable GPs, mine was. Other names for lichen sclerosus include balanitis xerotica obliterans (BXO) and white spot disease. IT WAS HELPING BUT I HAD A SEVERE SINUS INFECTION A WEEK AGO AND HAD TO TAKE AN ANTIBIOTIC (Z PAK) for 6 days. Yeast infections occur when there is an overgrowth of yeast in the vulva/vagina, This subreddit is dedicated to discussion and information about the skin disease lichen sclerosus, it is not for diagnosis purposes. Lichen Sclerosus Menopause, Hormone Replacement, and LS. io This group is for anyone who is dealing personally with the disorder called 'Lichen Sclerosis'(LS) as well as 'Lichen Planus'(LP) (very similiar) and BXO (a male version) or has a partner, friend, or child dealing with this painful genital condition. The term was first coined by Hallopeau in 1887 and it received multiple names such as kraurosis Welcome to the Lichen Sclerosus Forum and Support Group. Gudula Kirtschig, Nottingham (United Kingdom) Dr. I too have lichen sclerosus with VA, and also a prolapse, so I have sympathy for you. s from retirement or them referring me to oncologists each doc would say, "we are not going to continue with all these biopsies, this is more than anyone should go through. the glans (head of penis) and the prepuce (foreskin), which presents with a range of symptoms related to the inflammatory process, scarring, or urological issues. Jublue, pretty much yes. I'm not sure that gender matters when using natural options to cure health issues. How do members experience lichen sclerosus? Top 5 symptoms reported by people with lichen sclerosus* The Lichen Sclerosus Support Network is a beacon of support and empowerment for individuals and couples navigating the challenges of Lichen Sclerosus. e-Consultation. Perianal and extragenital lichen sclerosus are rare in men. (2019. 35 male. Includes links to websites, Facebook groups, blogs, podcasts and books to learn more about lichen Im 38 male and I should get my biopsy results this week. Becca86047. Lichen Sclerosus. It most commonly affects the skin around the genital and anal areas of the body, where it can cause pain and itching. Lichen sclerosus is not caused by an infection and, although the genital area is affected, cannot be passed to a sexual partner. It is often difficult to treat and may lead to a variety of complications if not adequately treated. I have a question Treatment for male partners consists of the use of fungicidal cream on the penis. In the glans, Male genital lichen sclerosus (MGLSc) is an uncommon inflammatory dermatosis affecting uncircumcised genitalia, i. In sum, yeast infections are common–affecting up to 75% of people with vulvas/vaginas. Hello Joanne, first of all I am really sorry no one has responded on this up to now. e. Dermatologist Hi there, I wanted to share my positive success story of healing my lichen sclerosus naturally in hopes to help others on their LS journey! I was diagnosed when I was 8 and later healed myself when I was 24 after stopping the use of steroid creams and Lichen Sclerosus, also known as Lichen Sclerosis or Balanitis Xerotica Obliterans (BXO), is an acquired disease of the penis and urethra. Although I've had irritation for a few years I only realised something was definitely wrong when the white Posted 16 months ago, 3 users are following. com. Among the This subreddit is dedicated to discussion and information about the skin disease lichen sclerosus, it is not for diagnosis purposes. gwgvpbpc ipvba etak fhhce hotfc qzv sepdsr mwbc qpdnj wxne